EDS (Ehlers Danlos Syndrome) Support

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For those reading this blog who don't know what EDS is, it's a group of thirteen individual genetic conditions, all of which affect the body’s connective tissue (think of hypermobile joints, though this isn't all the story). Symptoms commonly include, but are not limited to, long-term pain, chronic fatigue, dizziness, palpitations and digestive disorders and issues related to hyper mobility.

We have recently received additional training from the EDS charity ehlers-danlos.org and together we have come up with a 10-session plan for those of you that are unable to afford your own support. We are aware our 10 sessions of funded support is woefully inadequate, however, we are hoping that you will gain ideas to help you on your journey and find ways that you can have more control over your condition and your wellbeing. We can cover coping strategies for anxiety, pain, flare ups as well as relationships with professionals and those close to you.

Out support is available online through Skype/Zoom/telephone and in person in Staffordshire.  We hope to offer a new service using Neurofeedback in 2018 but this would require in person support. Do Google Neurofeedback as we are starting a trial period in 2018 to see if neurofeedback can help reduce the anxiety and pain associated with EDS as well as other conditions.

If you have EDS and would like to find out more about our support, do get in touch with us or ehlers-danlos.org

Best wishes, Mel